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Our ARC’s maternity and perinatal mental health researchers have collaborated with people with lived experience and charities to explore how to improve support for families with children’s social care involvement during the first two years of life. This research is influencing policy and informing public and professional awareness.
The first two years of a child’s life are critical for their development. For women with social risk factors — such as those experiencing substance misuse, domestic abuse or learning disabilities — children’s social care services (CSC) may become involved during this time.
Most children in care proceedings in England are under the age of one, with more than half being newborns. While CSC plays a crucial role in supporting vulnerable families, their involvement can complicate the relationship between parents and health and social care professionals. A common fear for women is the risk of their child being placed in state care.
Despite the scale of the problem, evidence about women’s experiences and outcomes has until now been limited.
Clean Break Theatre company performing ‘Scenes from Lost Mothers’.
Our ARC’s maternity and perinatal mental health theme, through NIHR research fellow Kaat De Backer’s PhD work, collaborated with people with lived experience, the charity Birth Companions, Oxford Population Health and University of Lancaster to address this evidence gap through the MUMS@RISC study.
The researchers explored maternal characteristics, outcomes and experiences of women in contact with CSC in the perinatal period — particularly mothers facing separation from their infant.
Using a range of methods and data sources, the researchers:
Revealed that a third of women who died during or in the year after pregnancy were known to CSC — highlighting the urgent need to prioritise and improve mothers’ care
Highlighted the complex healthcare experiences of women and healthcare professionals
Made recommendations for a trauma-informed and skilled workforce, improving multi-agency collaboration, and for healthcare systems to prioritise building trust
Research findings have generated significant media interest in The Guardian and on BBC Radio 4 Woman’s Hour, and have been presented to policymakers at NHS England and the Department of Health and Social Care to inform future policy.
Findings were presented at an ARC South London conference in July 2025 with more than 300 attendees, including policymakers, clinicians, social workers, service managers, psychologists, lawyers, women with lived experience, charity workers and campaigners.
“This study has given a voice to birth mothers. It has forced a microscope on our reality, evidencing the shortcomings of a fractured system. We hope it will raise greater awareness of what is happening to those, like us, who struggle to advocate for themselves and are faced with red tape, lack of compassion and a ‘one size fits all’ approach.”
Martha, on behalf of the MUMS@RISC lived experience advisory panel
“The MUMS@RISC study is hugely valuable in centring the significance of the first 1001 days, and the role that CSC services can, and should, play in supporting parents to give their baby the best possible start in life. But [it also] shows us that services and systems are often unable to meet the needs of pregnant women and mothers in the most complex and traumatic situations, with sometimes tragic results.”
Kirsty Kitchen, Head of Policy at Birth Companions
Supporting families with children’s social care involvement can be challenging, but there is some very good practice underway in parts of the country. Unfortunately, these efforts are often in spite of, rather than supported by, the wider systems in which they operate. We have identified the following priorities for action:
Routine enquiry about domestic abuse during antenatal and postnatal contacts — mandated by the Domestic Abuse Act 2021 — needs to be robustly implemented across healthcare settings.
Consideration of ‘risk’ requires a holistic approach, grounded in the current, individual circumstances of each woman and her family. Medical and social risk must be jointly considered through multi-disciplinary teamwork.
Integrated care models, such as one-stop-shop models, need to be tested and adapted to tailor multidisciplinary care around the complex physical, mental and social needs of pregnant and postnatal women.
When women are facing removal of their baby, a person-centred approach is essential to avoid further trauma. Compassionate conversations about their wishes should be respected as much as possible.
Separation at birth must always be approached with compassion. Interventions such as Hope boxes can support connection, dignity and compassion, and minimise trauma for everyone affected.
Enhanced postnatal follow-up after infant separation is critical, both by maternity and mental health services.
Training to facilitate these improvements — whether about domestic abuse enquiry, trauma-informed care, or supporting women through separation — must be given the same status as training in clinical skills, as it can equally be lifesaving.
If our research recommendations are implemented nationally, they could contribute to safer care and improved outcomes for:
Original source: arc-sl.nihr.ac.uk — NIHR ARC South London legacy content archived June 2026.